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KMID : 1172020100110010001
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Journal of Korean Bioethics Association
2010 Volume.11 No. 1 p.1 ~ p.14
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Public"s Attitude Toward National Biobank Issues
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Cho Sung-Kyum
Cho Eun-Hee
Park Seong-Cheol
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Abstract
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This study aimed to analyze the public"s perception and attitude toward a national biobank. Using a telephone survey, researchers collected data from 708 completed interviews conducted throughout 2009. These interviews revealed 5 major trends regarding the public"s opinion of a national biobank. First, awareness of national biobanks were very low with only 13.9% of respondents indicating that they had heard of a biobank. Secondly, the public"s attitude toward biobanks was an optimistic one. Another, this survey also suggested that less than 50% of respondents were reluctant to provide their personal genetic information. Additionally, respondents emphasized "public service" and "citizen participation" as the primary principles for making a national biobank. Lastly, citizens were aware of both the risks and benefits associated with the creation of a biobank. Lastly, citizens were aware of both the risks and benefits associated with the creation of a biobank. While many people were wary of the government"s ability to maintain their privacy, they also recognized the research benefits of compiling such a wide array of genetic data. Overall, the public"s perception of national biobanks was consistent with that of stem cell research and other biotech issues.
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KEYWORD
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public biobank, biotechnology, social survey, ELSI
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